Wednesday, 19 June 2019

Well..
The next chapter begins. .A new version of self advocacy and a continued challenge.

Perhaps a challenge that I'm better prepared for,  after the long and soul awakening journey with fibromyalgia.
None the less an undoubted ambiguous journey once again.

A few weeks ago I received another new diagnosis. This one being BIG and terrifyiing. One that I'm still struggling with. To understand; to experience a range of emotions and then accept.
This process may take me years but hopefully my acceptance will come before the condition takes hold of me.
I have good minutes and bad hours but will hopefully be able to turn those to complete opposite realms.

The new diagnosis is completely left field - out of nowhere and has hit me like a sharp slap on the face. A complete game changer. Changing absolutely all aspects of my life, future directions and dreams. But, it cannot be for nothing.
My challenge is to make this experience have a meaning and some value and again I plot a new course. Charter new territory.

Brace myself,  prepare myself, stay strong, educate and empower myself and others and learn and grow .
But biggest challenge is to accept... to make my life hold value - to count for something.  Make peace with it.

Become friends and look that fear shit straight in the eye and let it know I have no plans on allowing it to win without a damn good effort.
I will put up a fair fight. I may not win - but by who's definition? ?

This neurological condition will take many things.
Being progressive and a degenerative cerebellar disorder its cause is cerebellar atrophy through unknown reason or cause.
But its here to travel with me and no doubt change me further .
There is no medical treatment nor cure.  But I assure you I will plot my own treatment and forge my own path.

As much as I wish it was far different - challenge accepted.

Let's go....

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