Well..
The next chapter begins. .A new version of self advocacy and a continued challenge.
Perhaps a challenge that I'm better prepared for, after the long and soul awakening journey with fibromyalgia.
None the less an undoubted ambiguous journey once again.
A few weeks ago I received another new diagnosis. This one being BIG and terrifyiing. One that I'm still struggling with. To understand; to experience a range of emotions and then accept.
This process may take me years but hopefully my acceptance will come before the condition takes hold of me.
I have good minutes and bad hours but will hopefully be able to turn those to complete opposite realms.
The new diagnosis is completely left field - out of nowhere and has hit me like a sharp slap on the face. A complete game changer. Changing absolutely all aspects of my life, future directions and dreams. But, it cannot be for nothing.
My challenge is to make this experience have a meaning and some value and again I plot a new course. Charter new territory.
Brace myself, prepare myself, stay strong, educate and empower myself and others and learn and grow .
But biggest challenge is to accept... to make my life hold value - to count for something. Make peace with it.
Become friends and look that fear shit straight in the eye and let it know I have no plans on allowing it to win without a damn good effort.
I will put up a fair fight. I may not win - but by who's definition? ?
This neurological condition will take many things.
Being progressive and a degenerative cerebellar disorder its cause is cerebellar atrophy through unknown reason or cause.
But its here to travel with me and no doubt change me further .
There is no medical treatment nor cure. But I assure you I will plot my own treatment and forge my own path.
As much as I wish it was far different - challenge accepted.
Let's go....
My Name is ..... Writting from Chicago USA.
ReplyDeleteI am reaching out to share a personal experience that changed my life and might be important for you or someone you care about. Five years ago I was diagnosed with HIV,fibromyalgia and began antiretroviral therapy. Living with the side effects, including vomiting and a white-coated tongue, was difficult, and I spent many days praying and seeking help from medical and spiritual communities.
A few months ago a friend at work, Hannah, who is also from West Africa, told me about Dr Jekawo and his herbal medicine. Because I trusted Hannah and was desperate for relief, I contacted Dr Jekawo at drjekawo@gmail.com and through his website www.drjekawo.com. He sent me a product labeled Dr Jekawo Herbal Medicine Cure For HIV/Aids,fibromyalgia and provided instructions for use.
After following his instructions, I went for testing two weeks later and the result was negative. This outcome has given me renewed hope and I wanted to share this with you because the herbal treatment reportedly addresses not only HIV/Aids but other viral conditions such as herpes, shingles, and hepatitis B and C, Cancer, Diabetes,Parkinson, Dementia,fibromyalgia, also help bring Ex Back, Dr Jekawo is a great herbal doctor with ancestral powers to cure all diseases.
If you or anyone you know is seeking alternatives or additional options, I wanted to pass along Dr Jekawo’s contact information so anyone can reach out directly and ask questions about any cure for any diseases, its use, and whether it might be appropriate. I understand this is a sensitive and complex topic.
If you would like more details about my experience, the timeline, or how I communicated with Dr Jekawo, let me know and I will share what I can.