Well..
The next chapter begins. .A new version of self advocacy and a continued challenge.
Perhaps a challenge that I'm better prepared for, after the long and soul awakening journey with fibromyalgia.
None the less an undoubted ambiguous journey once again.
A few weeks ago I received another new diagnosis. This one being BIG and terrifyiing. One that I'm still struggling with. To understand; to experience a range of emotions and then accept.
This process may take me years but hopefully my acceptance will come before the condition takes hold of me.
I have good minutes and bad hours but will hopefully be able to turn those to complete opposite realms.
The new diagnosis is completely left field - out of nowhere and has hit me like a sharp slap on the face. A complete game changer. Changing absolutely all aspects of my life, future directions and dreams. But, it cannot be for nothing.
My challenge is to make this experience have a meaning and some value and again I plot a new course. Charter new territory.
Brace myself, prepare myself, stay strong, educate and empower myself and others and learn and grow .
But biggest challenge is to accept... to make my life hold value - to count for something. Make peace with it.
Become friends and look that fear shit straight in the eye and let it know I have no plans on allowing it to win without a damn good effort.
I will put up a fair fight. I may not win - but by who's definition? ?
This neurological condition will take many things.
Being progressive and a degenerative cerebellar disorder its cause is cerebellar atrophy through unknown reason or cause.
But its here to travel with me and no doubt change me further .
There is no medical treatment nor cure. But I assure you I will plot my own treatment and forge my own path.
As much as I wish it was far different - challenge accepted.
Let's go....
Wednesday, 19 June 2019
Monday, 17 June 2019
I havent written in here for so long that I cant remember how it all works but want to start blogging again and sharing my next chapters.
I believe in supporting one another.
I believe in contribiting to raising awareness and following a common cause and lastly I believe that knowledge is power.
We never stop learning or growing. We meet others along our way.
We stumble and fall sometimes but with strength we return to the plight and commit to going forwards once again.
Much has changed in my break from here. . And yet little has changed
Here begins the next chapter. ..
I believe in supporting one another.
I believe in contribiting to raising awareness and following a common cause and lastly I believe that knowledge is power.
We never stop learning or growing. We meet others along our way.
We stumble and fall sometimes but with strength we return to the plight and commit to going forwards once again.
Much has changed in my break from here. . And yet little has changed
Here begins the next chapter. ..
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